Subaortic stenosis, also called subvalvular aortic stenosis or SAS, is a heart disorder affecting 1 percent of infants born with congenital heart defects. In this type of heart disease, the passage between the left ventricle of the heart and the aorta narrows. This narrowing interferes with the smooth flow of blood from the heart to the rest of the body. It causes the heart to work harder and can possibly lead to complications. When subaortic stenosis is present, the heart’s left ventricle — which is responsible for pumping blood out of the heart — is partially blocked. This makes it difficult for oxygen-rich blood to reach the rest of the body.
UK Gill Heart & Vascular Institute provides supportive and advanced care for adults with subaortic stenosis. We understand the complexity of cardiac conditions. Our expert team with the Adult Congenital Heart Program is committed to providing comprehensive and compassionate care for those diagnosed with subaortic stenosis.
Subaortic stenosis is the second most common type of aortic stenosis, and it is twice as common in males as females. Most patients also have other heart issues.
Adults who had subaortic stenosis as children may find that it slowly gets worse as they age. It can potentially cause major symptoms that interfere with their lives.
Commonly diagnosed in adolescents and young adults, subaortic stenosis can lead to a variety of symptoms. Many patients will not have symptoms until the condition worsens, but symptoms may include:
- Chest pain
- Dizziness or fainting
- Fatigue
- Heart murmur
- Lightheadedness
- Shortness of breath, especially while exercising
If left untreated, it may result in more severe complications. This is why early detection and a tailored treatment approach are important to address the unique needs of each patient.
The prognosis for individuals diagnosed with subaortic stenosis can vary widely depending on:
- The severity of the condition
- The age at diagnosis
- The presence of associated complications
In many cases, with appropriate and timely medical intervention, individuals with subaortic stenosis can lead normal, healthy lives.
Subaortic stenosis is primarily a congenital heart defect, meaning it is present at birth. The exact cause of subaortic stenosis is not always clear. But several factors and conditions may contribute to its development.
There is evidence to suggest a genetic predisposition to subaortic stenosis. It can sometimes run in families, indicating a hereditary component. Certain conditions, including Noonan syndrome and Williams-Beuren syndrome, have been associated with an increased risk of subaortic stenosis.
Children with congenital heart disease become adults with congenital heart disease (CHD). Ninety percent of children born with CHD have a normal life expectancy due to improved surgical interventions and better medical management. At all ages, close monitoring and expert care for CHD patients are essential. Despite this, studies indicate that 2 out of 3 young adults with CHD don’t transition from pediatric to adult CHD care. Not getting continued cardiac care can lead to a variety of health problems and poor outcomes.
To guide teens and their families through the transition, UK Gill Heart & Vascular Institute team members talk about the transition early and often. Starting at age 15, teens with CHD begin transition education. One Wednesday every month, a special transition clinic staffed by adult congenital heart disease providers, is held to meet with teens and their families to discuss important topics, including:
- Abilities and limitations experienced as an adult with CHD
- Lifelong need for proper CHD monitoring and treatment
- What adult CHD care may involve over the years
Additionally, once you transition to adult care with the Adult Congenital Heart Program at UK Gill Heart & Vascular Institute, we work hard to enable you to keep your appointments and testing on track. We also work hard to empower you with knowledge and assist you in being your best advocate to live your best life. If you miss an appointment, we will call to reschedule.
During your first visit to the UK Gill Heart & Vascular Institute’s Adult Congenital Heart Program, you’ll meet our clinic nurse, social worker and other members of your care team. You’ll also undergo imaging exams, which may include an echocardiogram or a cardiac MRI.
Once imaging is complete, you will meet with an adult congenital cardiologist and other team members for up to one hour. You’ll discuss the results of your echocardiogram and your health history and symptoms. You will also get in-depth education about your diagnosis, how it may affect you moving forward and possible treatment options. The meeting is also a great opportunity to ask any questions about living with CHD.
When coming to your appointment:
- Bring a list of any medications or supplements you take and surgeries you’ve undergone.
- Dress comfortably.
- Have your insurance information on hand. UK HealthCare accepts most insurers, and financial assistance is available.
- You may want a family member or friend with you to take notes or help ask questions.
Where we are located
The UK Gill Heart & Vascular Institute is located at 800 Rose St. in Pavilion G, on the first floor of UK Albert B. Chandler Hospital. We will mail you a map and directions when your appointment is scheduled.
Patient drop-off
Patients can be dropped off in front of the main entrance to Albert B. Chandler Hospital at 1000 S. Limestone. If you are dropped off at the main entrance, you’ll enter the revolving doors on the ground floor of the hospital. Take the main stairs just to the left (or elevator across the atrium) to the first floor of Pavilion A.
After climbing the stairs or taking the elevator, turn left. You’ll pass the Kentucky Wall and Kentucky Children’s Hospital on your right. Continue to the end of the hall until it comes to a T shape. Turn left and the Gill clinic entrance is across from an open area housing the organ donor wall.
Parking
It is easiest to park in the UK HealthCare Parking Garage, across from the hospital at 110 Transcript Ave.
There are two paths from this garage to the Gill clinic:
- You may take the free shuttle from Level A of the parking garage. You’ll exit the shuttle at the Pavilion A/ Pavilion G stop in front of the main entrance to the hospital. After climbing the stairs or taking the elevator, turn left. You’ll pass the Kentucky Wall and Kentucky Children’s Hospital on your right. Continue to the end of the hall until it comes to a T shape. Turn left and the Gill clinic entrance is across from an open area housing the organ donor wall.
- From Level C of the parking garage you may walk or take a golf cart across the pedway to the first floor of Pavilion A. Turn left past the help desk and walk away from the dining hall. You’ll pass the Kentucky Wall and Kentucky Children’s Hospital on your right. Continue to the end of the hall until it comes to a T shape. Turn left and the Gill clinic entrance is across from an open area housing the organ donor wall.
If you need help finding your way, information desks are located inside the main entrances to Pavilion A, both on the ground floor and at the end of the pedway on the first floor. You may also call the information desk at 859-323-5816.
Clinical trials provide access to novel treatments for those in the adult CHD program at UK Gill Heart & Vascular Institute. Through our Cardiology Clinical Research Center, patients benefit from advances in valve replacement and other therapies before they become standard treatment. Your care team will notify you if you qualify for an ongoing clinical trial.
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