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Infant Complex Care Clinic

The Kentucky Children’s Hospital Infant Complex Care Program provides medical and developmental follow-up for babies and young children up to 5 years of age. This program, in collaboration with your child’s primary care provider, serves as a medical home to help coordinate your child’s care.

A father takes his toddler to the doctor.The goals of Infant Complex Care Program include:

  • Ease the transition from hospital environment to home.
  • Provide an on-call service phone for questions about your child’s care.
  • Avoid unnecessary ER visits.
  • Reduce the need for hospital readmission.
  • Assist your child’s primary care provider in caring for their special needs.
  • Limit subspecialist appointments in the immediate period after going home, then slowly introduce as needed.

Developmental follow-up is tailored to meet the needs of each individual child. Each child is evaluated by a multidisciplinary team that may include a physician, a nurse, a dietitian, a physical therapist, a speech-language pathologist, a clinical psychologist, and a social worker. Formal developmental testing is usually completed at adjusted ages 6 months, 12 months and 24 months.

  • Common conditions include:

    • Moderate to severe chronic lung disease.
    • Dependence on technology such as a ventilator or feeding tube.
    • Chronic conditions involving three or more organ systems requiring sub-specialty follow-up.
    • Cerebral palsy.