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Patient story: Joseph Madison

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Most of his life has been on the go – as a limousine driver, Lexington native Joseph Madison spent three decades chauffeuring everyone from teenagers attending their first prom to celebrities like the Four Tops and John Michael Montgomery.

Talkative and energetic, Madison never liked to sit still. At one point, he was working three jobs to keep himself busy. But about five years ago, his hectic lifestyle came to a halt when he fell ill.

It began as a nagging cough. His primary care physician suspected severe bronchitis, but Madison said he never made a full recovery from what seemed like a run-of-the-mill infection.

“One day I’d feel well, the next day I wouldn’t,” he said.

As his health worsened, he got some startling news: He had congestive heart failure.

‘He was wasting away’

The news came as a shock to Madison, who had no family history of heart problems and had been otherwise healthy his entire life. However, respiratory infections like bronchitis are linked to risk for heart attack because of the stress on the body, and Madison said he may have suffered a “silent heart attack” following his sickness and simply not realized what had happened.

His illness left him unable to work, and he received an implantable cardioverter defibrillator. But Madison continued to get sicker and weaker.

In October 2016, Dr. Azhar Aslam from Central Baptist Hospital referred Madison to UK HealthCare for advanced surgical options to treat his heart failure. Baptist Health is a part of UK’s Organ Failure & Transplant Network.

Madison’s initial evaluation at UK was with Dr. Maya Guglin, director of mechanical assisted circulation at the UK Gill Heart & Vascular Institute. He weighed just 97 pounds and was incredibly weak.

“I saw him for the first time as a new patient here at Gill, listened to his story and told him we had to admit him right away,” Guglin said. “He was wasting away, but I did not think that hospice was the right option for him – at least, not yet. I felt we could still try.”

“I was a six-cylinder engine working on just one cylinder,” Madison said. “At first, I didn’t want to do a heart transplant, but they said if I didn’t, I’d probably die. So I said, ‘Sign me up, because I don’t have anything to lose.'”

After his evaluation, Madison was admitted to the hospital immediately. But in order to survive a transplant, patients need to have some degree of strength and health – and at first, his odds didn’t look good. The heart transplant team worked hard to improve his overall condition, and Madison showed real drive to improve his health, said Dr. Navin Rajagopalan, medical director of heart transplantation at UK.

“When we first met him, it was clear that he was dying of heart failure and appeared almost too weak and frail to be a candidate for transplant,” Rajagopalan said. “But we put him on the right medications, and it appeared he was working very hard with physical therapy to get stronger so he could be a candidate.”

Sudden good news

On Thanksgiving evening 2016, Madison was just settling in to enjoy some real food – turkey, dressing, mashed potatoes, the works – when a nurse ran in to stop him from taking his first bite.

“She said, ‘We’ve got a heart for you right now,'” Madison said. “I cried like a baby. They asked if I was nervous, and I said, ‘No! Let’s go.'”

The next day, following an 8-hour operation led by UK cardiothoracic surgeon Dr. Alexis Shafii, Madison woke up with a new heart. He continues to build his strength as the months go on, and he recently returned to working part-time. He tries to stay active, walking outside whenever he can, and he says his near-death experience changed his outlook on life.

“I was bedridden here at home, and I was bedridden at UK,” he said. “The little things like birds, trees, plants – they seemed so small then, but now they’re big priorities for me.”

He thinks about his donor often. Madison’s daughter, who helped care for him following the surgery, wrote a letter for Kentucky Organ Donor Affiliates to give to the donor’s family to thank them for what their loved one did.

With the expertise of UK HealthCare’s transplant team and a gift from a stranger, Madison is alive today to appreciate his second chance.

“I would just tell my donor, ‘Thank you, and God bless you,'” he said. “I’m up walking today, and I’m so glad these people at UK were here for me.”

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